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Ayelet’s Book of Life

The online blog that ended up documenting every day leading up to our two-year-old daughter Ayelet ’s death on January 31 2012 was supposed to be exactly the opposite. It was suppose to be a record of survival intended to capture every day before during and after the bone marrow transplant six months earlier that would cure her from an extremely rare genetic disease. It was to be a digital book of life. We set up the website dubbed Eye on Ayelet the day we got to the transplant hospital in Cincinnati in order to keep our families updated from an isolated ward in an unfamiliar hospital 500 miles away from our home on the Upper West Side of Manhattan. It sped up the challenging communication process — text and call our parents e-mail siblings — and it streamlined the basic info. But somehow this digital account of our daughter’s fight for life of our life in a hospital went from medical mundane to miraculous. From tactical to transcendent. From afraid first-time parents to documentarians of one of the greatest Jewish female heroines of all time — at least in our opinion. And by the end 60 000 visits agreed.

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